tag:blogger.com,1999:blog-7500315048730943533.post4388318133425709489..comments2020-01-25T04:10:31.906-08:00Comments on Paget's Disease - My Journey: DiagnosisEvelyn Walkerhttp://www.blogger.com/profile/12736267909482572779noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7500315048730943533.post-77780491577523009092020-01-25T04:10:31.906-08:002020-01-25T04:10:31.906-08:00Well golly gosh gee, I have just come onto this Vl...Well golly gosh gee, I have just come onto this Vlog that I began in September 2013, so much as happened since then. A masectomy of the left breast was necessary and a few axillary nodes, chemo, Herceptin, and a decision not to use the Tamoxofin for the rest of my "life" as there were no guarantees I wouldn't get it back again, the cons outweighed the pros. Now, back in 2017 I was diagnosed with Acute Myeloid Leukemia, yep, and other cancer, which they say could have been a result from the radiation back in 2013, well shit sherlock, what can one say. Now this journey has not been fraught with its problems,the chemo treatment almost killed me, unable to have a stem or bone marrow transplant due to the pre lead up to it involved masses of doses of the chemo that almost did me in, so they advised not a wise way to go. Amazingly my body went into remission until Sept 2018 once again they didn't want to put me through the chemo regime, so they tried me on another type of chemo, Azacitadine, two needles into the stomach area, every day for a week, gosh this was harsh, nausea, sore tummy, fatigue, and sadly all of a sudden it wasn't working, now I am on a trial drug which has worked on other blood cancers but trials are still going for AML. Haven't had a good run on this either, had a golden staph infection, and UTI plus some other unusual blood bacteria infection. Now that those have been dealt with I have begun the chemo again. Not looking too positive yet, blood counts are still very low,tired an awful lot of the time. But I plod along and wish/hope something positive will happen. Evelyn Walkerhttps://www.blogger.com/profile/12736267909482572779noreply@blogger.comtag:blogger.com,1999:blog-7500315048730943533.post-57065796484427206682013-09-24T05:03:23.751-07:002013-09-24T05:03:23.751-07:00I am sorry your journey was filled with chaos and ...I am sorry your journey was filled with chaos and little medical support.i am glad you have let them know,hopefully they will learn and improve for other patients.unfortunately most medical practitioners who treat people have never suffered with cancer and as 1 said to me...until she was having chemo and feeling side affects did she fully understand what patients felt like.she always thought she was fully supportive and empathetic with her patients but wasn't till she herself was being treated did she realise the shortcomings in oncology services.as practitioners they work on medical information given about drugs or treatments and unfortunately as with most things people do react to things differently.so by venting and sharing hopefully you are also teaching those that can be taught.good luck with your future follow ups but you are a gutsy lady and will forever fly.julihttps://www.blogger.com/profile/11649669110552943431noreply@blogger.comtag:blogger.com,1999:blog-7500315048730943533.post-12070566879836535772013-09-23T06:54:43.323-07:002013-09-23T06:54:43.323-07:00http://community.breastcancer.org/forum/137/topic/...http://community.breastcancer.org/forum/137/topic/797412#post_3486536Evelyn Walkerhttps://www.blogger.com/profile/12736267909482572779noreply@blogger.com